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Young Epilepsy and Veriton Pharma Ltd (Veriton) have announced a key agreement, where the organisations will work in partnership to deliver the ‘Rules 4 Schools” element of the charity’s newly launched ‘#InTheMoment’ initiative.

Through this policy influencing initiative, Young Epilepsy, is looking to break down the obstacles to opportunity for the 55,800 school aged children (5-18 years) with epilepsy in the UK1.  Starting with the ‘Rules 4 Schools’ campaign, the key aim for the charity, supported by Veriton, is to challenge current thinking and encourage systemic change in priority areas.

Since 2014, all state schools in England are legally required to have a policy on supporting children with medical conditions such as epilepsy.  This means that all children with epilepsy should have an Individual Healthcare Plan (IHP) which sets out essential information such as how the condition affects them and what to do in an emergency. However, Young Epilepsy believe many schools have some way to go in adequately supporting children with epilepsy.

Matt Robertson from Young Epilepsy stated: “Schools need to make sure that children with epilepsy have the support they need to fulfil their potential in an inclusive and safe environment.  In a survey2 we carried out in 2017, we found that 1 in 3 (36%) of young people with epilepsy still don’t have an IHP at school and only 51% of families surveyed said that school staff had been trained to support a young person with epilepsy.  This needs to be dramatically improved and we think the ‘Rules 4 Schools’ can help to achieve this.”

The ‘Rules 4 Schools’ campaign will concentrate on four key areas:

Encouraging or working with schools to ensure all young people with epilepsy have an individual healthcare plan
Encouraging or working with schools to have a policy on supporting pupils with medical conditions
Achieving a requirement on schools to publish medical conditions policies on their websites
Campaigning for school inspections to include a routine check for support for pupils with medical conditions
Matt Robertson commented “We are delighted to be working in partnership with Veriton on this critically important campaign and we really look forward to making a difference to as many young people with epilepsy as possible through the #InTheMoment – Rules 4 Schools initiative.”

For more information about Young Epilepsy and the campaign, please visit www.youngepilepsy.org.uk/rules4schools and www.youngepilepsy.org.uk and https://inthemoment.org.uk


Joint Epilepsy Council (2011) Epilepsy prevalence, incidence and other statistics

Young Epilepsy (2017) Epilepsy support in schools: Survey of young people with epilepsy and their parents and carers

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